I recently met up with a new MS’er, who was initially unaware that I too had the condition. The look of both shock and relief on her face when she discovered that I had MS was overwhelming. She was clearly terrified of what ‘MS’ might look like and I was taken back to the moment I was put in touch with someone with MS just 5 months after my own diagnosis. I don’t know what I was expecting, but I definitely wasn’t expecting the young lady to look as ‘normal’ and as full of life as she did. I’m sure I had all sorts of visions in my head of what I might find and was scared that actually meeting someone with MS would make everything too real and confirm my fear that MS = extreme disability. People with MS surely all look depressed and depressing and old and frail and disabled and ugly and scary and monstrous and totally alien. Don’t they?!
What were YOUR expectations before you met your first MSer? And, what was the reality?
First published 20 September 2017